This website is intended for U.S. audience only.

Media library

FOP experiences

Falling

Getting dressed

Eating

Standing up

FOP stories

Danie

Nadine

Erin and Lori

Caregiver experiences

Turning fear into action

My mother's circle of support

The power of a mother's love

Expert insights

Signs and symptoms

Genetics and diagnosis

Disease progression

Misdiagnosis

Procedures to avoid

Flare-ups

Flare-up prevention

Science

Mechanism of disease